Saturday, November 1, 2008


Within the next week, we will officially be launching The Project - The Children's Rare Disease Network interim site. This will be a fully functioning site that will allow us to share what we will be building, the site capabilities, what content we will be aggregating and the partnerships we will be creating. It is a very exciting time for us, and a special thanks to Pike Design and those from the Project that have been working tirelessly to help get this off the ground!

Lots of momentum, so much potential we are at the onset of a huge movement that will have a tremendous impact on these children and their families. Thanks in advance for your generosity and help and for your willingness to embrace these efforts as your own. It takes a village!

All the best,

Nicole Boice

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