First 'Lunch & Learn' for The Project

Today we hosted our first 'Lunch & Learn'. The purpose was to bring together engaged men and women who wanted to learn more about our cause, and it provided an opportunity for our team to tap the expertise of our participants in areas of philanthropy and business but also provided a platform for networking, sharing stories, etc.

We presented information about rare disease, showcased what the current issues are and how we are planning to address them. We introduced the Children's Rare Disease Network and discussed our fundraising initiatives and efforts. What was interesting is that 80% of those in attendance were touched by rare disease in some way. We were fortunate to have had representation from Williams Syndrome and a rare pediatric cancer, and these brave women were able to share their stories with the group, which allowed our guests to hear first hand about the challenges and problems that they faced when working to diagnose and help their children. They were also able to hear from these women how important they felt The Project's initiatives, mission, goals and objectives were for the rare disease community in total. The afternoon was emotional, but also uplifting, bringing together passionate, committed & innovative individuals provides a platform for incredible discussion and brainstorming.

We are planning to host these throughout the state and have the opportunity to start hosting these throughout the country. We are asking that those that join us put their thinking caps on to help introduce our organization to relevant individuals that can help with expertise in business, science & philanthropy, or that have the financial means to donate and help fund our start up efforts, or those that are well connected personally and professionally to help open doors for our charity and our aggressive initiatives nationally.

Thank you in advance to all that attended. Please feel free to contact us if you think this type of presentation would be of interest in your area.

Make a Difference!

Nicole

Facebook Cause - Join us!

We are working daily to try to build a broad network on Facebook that will support The Project - The Childrens Rare Disease Network. The beauty of social networking sites like Facebook and Linked In are that they can generate tremendous awareness and support for something very quickly. We would like to hit 1 million members supporting children with rare disease! How amazing to have the world in 3 short months stand up and show that they care.

Join our cause on Facebook and tell your friends - it is listed as The Project Charity! If you can't find it email us and we will get you there!

Technology is an amazing tool - Until next time!!

Nicole